Day 7 – Still walking to save Ava from Simon’s sloth (and inhumanity)

Vera Twomey is walking to get medicinal cannabis for her daughter Ava, who has Dravet Syndrome. She’s walking powered by a Mum’s determination to do what’s right for her child.

She has the full support of her family, and everyone she meets on her 200+Km walk in the cold of an Irish Spring. Everyone, that is, except the two Government ministers who should be supporting her at every turn. Those are the Minister for Health (Simon Harris), and the Minister for Children and Youth Affairs (Katherine Zappone). Neither have lifted a finger to help.

The Government of the ‘Republic’ of Ireland have broken the promise of the 1916 Proclamation. That is the founding document upon which the Government lays it’s claim to legitimacy, and contains the phrases: “The Republic guarantees … equal rights and equal opportunities to all its citizens, and declares its resolve to pursue the happiness and prosperity of the whole nation and of all its parts, cherishing all of the children of the nation equally…“. That guarantee is demonstrably now void.

Yesterday we learned that Ava had a heart attack as a result of her seizures. She was aged 5 at the time.

Anger continues to mount as other Mums learn of the plight of Vera’s family. As the videos and photographs below show, Mums are starting to mobilise.

The cover picture is of Ava Barry, now aged 7.


The videos below are unedited.

What this is about as she leaves Emo, County Laois, is explained by Vera Twomey:

Some friendly faces in Ballybrittas:

Brian and Gino explain:

Arriving in Monasterevin, County Kildare:

What Vera wants for 7-year old Ava is perfectly safe, legal, and acceptable in other European states, and on most of the continent of North America and Canada!

Can you raise awareness of what this Mum must do for her child in the face of an uncaring State? Can you share this link or page to others around our planet? Can you do your bit to draw international attention to the shameful conduct of the Southern ‘Republic’ towards one of it’s youngest citizens?

If you’re an ordinary citizen who understands that a Mum shouldn’t have to battle alone against the State, here’s how you can help:

  • Can you share this post?
  • Can you raise awareness by phoning a radio station?
  • Can you send an email to simon.harris@oir.ie to complain about both his actions and inaction?
  • Can you phone Simon Harris’ office on +353-1-281-3727 or +353-1-618-3805?
  • Can you come out and walk with Vera?
  • Can you sign the petition?
  • Can you bother the TDs in your constituency with phone calls and emails?

Only people power can change this situation. That means you.

(You can see for yourself a video of young Ava here)

Still photographs from today (2017-03-05). These images are free to use in support of Vera and Ava’s campaign. (An attribution to photographer Fachtna Roe would be appreciated, but isn’t necessary)

(Previous days uploads)

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3 thoughts on “Day 7 – Still walking to save Ava from Simon’s sloth (and inhumanity)”

  1. Great mother i hope you get it god bless you and Eva and family and friends the government should be ashamed

  2. Her fighting spirit will turn the tide every voice will be heard, pressure and exposing this cause can put enormous pressure on the politicians that should be compassionate and open to any medicinal cure to stop the seizures of this young child

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